We have created this page in support of Rachael and Johnny Casella and to honour their beautiful baby girl Mackenzie who was diagnosed with SMA Type 1 (Spinal Muscular Atrophy) at just 10 weeks old. Rachael and Johnny were told Mackenzie would not live to see her first birthday. In the blink of an eye they had their happiness destroyed and their future was to arrange the best palliative care possible for Mackenzie.
The life expectancy of a baby with SMA type 1 is 9 months to two years of age and little Mackenzie lost her fight on the 22/10/2017, just 7 months and 11 days old. SMA is the number one genetic killer in babies under two but hardly anyone knows about it and it is not routinely screened for.
Despite all the heartbreak Rachael and her husband Johnny have worked tirelessly in order to raise awareness for SMA, and are in talks with both NSW and federal health ministers. They want to ensure every prospective parent is entitled to genetic testing.
Please see there full story here
We want to support them by raising money as part of my participation in HBF Run for a Reason 2018. Please help me help them by giving whatever you can using the 'Give Now' button. The more people that know about Spinal Muscular Atrophy Association of Australia, the greater their impact, so please also spread the word by sharing my page with your friends and family. Thank you in advance for your generosity, it means a lot!